Alright kids. Haven't blogged in forever. That would be because things suck. I'm in MS no man's land, a place I've never been before and let me tell you, it's hell. In the past things would eventually smooth out and a status quo would develop. No such thing is happening this time around. The ironic thing is that I have no new lesions, it's just the stupid lesions in my thoracic spine can decide to wreak havoc in strange ways whenever they want.
So yes, I have been really down lately. "How do you know you're down?" a professional recently asked me. For me, I know I'm down when I get apathetic about pretty much everything. I stop doing things I like to do. Also in this case the constant spasms I get overnight in my hands are preventing me from DOING the things I like to do. That's a big downer.
I was denied disability the first try. That's not surprising, most people are. The reason, however, gives little hope for approval the second time around. See, I was denied because I have a masters degree. Doesn't matter that I was diagnosed two years after receiving it, or that my MRIs show progression, or that I've been on three treatments, or that I had to quit a part-time job after three weeks. I am too SMRT for disability. And it will continue to be a problem.
My disability lawyer has filed an appeal so my hearing will take place in about a year. Yes, a year. Lately I have been seeing specialists. PT, OT, speech therapy...so I keep busy seeing them and finding out new diagnoses. Mostly it's nice to finally find out the name for a problem I've been having. But in reality it sucks because there's no treatment for any of it.
So there you go. Hopefully I will get back to posting things when OT guy gets the splints in he ordered. One can hope.
