Yeah I know

Alright kids.  Haven't blogged in forever.  That would be because things suck.  I'm in MS no man's land, a place I've never been before and let me tell you, it's hell.  In the past things would eventually smooth out and a status quo would develop.  No such thing is happening this time around.  The ironic thing is that I have no new lesions, it's just the stupid lesions in my thoracic spine can decide to wreak havoc in strange ways whenever they want.

So yes, I have been really down lately.  "How do you know you're down?" a professional recently asked me.  For me, I know I'm down when I get apathetic about pretty much everything.  I stop doing things I like to do.  Also in this case the constant spasms I get overnight in my hands are preventing me from DOING the things I like to do.  That's a big downer.

I was denied disability the first try.  That's not surprising, most people are.  The reason, however, gives little hope for approval the second time around.  See, I was denied because I have a masters degree.  Doesn't matter that I was diagnosed two years after receiving it, or that my MRIs show progression, or that I've been on three treatments, or that I had to quit a part-time job after three weeks.  I am too SMRT for disability.  And it will continue to be a problem.

My disability lawyer has filed an appeal so my hearing will take place in about a year.  Yes, a year.  Lately I have been seeing specialists.  PT, OT, speech therapy...so I keep busy seeing them and finding out new diagnoses.  Mostly it's nice to finally find out the name for a problem I've been having.  But in reality it sucks because there's no treatment for any of it.

So there you go.  Hopefully I will get back to posting things when OT guy gets the splints in he ordered.  One can hope.